Stckler Syndrome Awareness - a personal perspective.
Stickler Syndrome, classed as being rare
Often missed, its burdens deeply layered.
Most affected needing long-term care,
While those who treat it must be well-prepared
It strikes about one child in each four thousand
It threatens life's enjoyment not its span
It deafens, blinds, and cripples where it lands
A scourge on child, on woman and on man
Addenbrooke’s stands firmly with its mission
Give care to help preserve the patient's sight
Front-line teams with knowledge and precision
With nursing care that's always apposite
Blighted, still I count myself as blessed
Retinas detached but each repaired.
My aunt and mother, blinded and distressed
Like me, their father crippled, yet his sight was spared.
Our son had a cleft palate at his birth
His joints were loose, we saw his limbs were long
Moorfields saved his sight and they deserve
Unending thanks, we kept steadfast and strong
What of those without awareness?
Is blindness born of unpreparedness?
Does ignorance bring such distress?
Will wisdom seal your campaign's success?
Nevin
Notes: Addenbrooke’s Hospital, Cambridge, England offers a specialist NHS Clinic for those afflicted by all aspects of Stickler Syndrome. Moorfields Eye Hospital, London, England is a celebrated and renowned world class centre providing a spectrum of eye care surgical-interventions and treatments.
Please pray for the many thousands of Stickler Syndrome sufferers, their families and carers in this fallen world in which we live. And for those professionals dedicated to their mental, physical and spiritual well being.
Amen, thanks be to God.
Stickler Syndrome, classed as being rare
Often missed, its burdens deeply layered.
Most affected needing long-term care,
While those who treat it must be well-prepared
It strikes about one child in each four thousand
It threatens life's enjoyment not its span
It deafens, blinds, and cripples where it lands
A scourge on child, on woman and on man
Addenbrooke’s stands firmly with its mission
Give care to help preserve the patient's sight
Front-line teams with knowledge and precision
With nursing care that's always apposite
Blighted, still I count myself as blessed
Retinas detached but each repaired.
My aunt and mother, blinded and distressed
Like me, their father crippled, yet his sight was spared.
Our son had a cleft palate at his birth
His joints were loose, we saw his limbs were long
Moorfields saved his sight and they deserve
Unending thanks, we kept steadfast and strong
What of those without awareness?
Is blindness born of unpreparedness?
Does ignorance bring such distress?
Will wisdom seal your campaign's success?
Nevin
Notes: Addenbrooke’s Hospital, Cambridge, England offers a specialist NHS Clinic for those afflicted by all aspects of Stickler Syndrome. Moorfields Eye Hospital, London, England is a celebrated and renowned world class centre providing a spectrum of eye care surgical-interventions and treatments.
Please pray for the many thousands of Stickler Syndrome sufferers, their families and carers in this fallen world in which we live. And for those professionals dedicated to their mental, physical and spiritual well being.
Amen, thanks be to God.
